How are your donations used in 2006 ?
Research programs and services : 84,3%
-62,8% are dedicated to curing diseases.
During the 2006 financial year, AFM invested 61 million euros in curing diseases.
This involves expenses incurred in research and development of therapeutics (33,7 million euros), as well as the Généthon laboratory (21,1 million euros), the Myology Institute (6,2 million euros)
Main actions :
- Généthon laboratory
- Myology Institute
- Calls for proposals
- International programs (the University of Pennsylvania; Laval University)
- Industrial programs (Trophos and Transgène biotechs; Prosensa, Genosafe)
- Clinical trials.
-34,3% are dedicated to helping patients
During the 2006 financial year, AFM invested 33,3 million euros in helping patients.
- Medical and paramedical actions : 4,3 million euros
- Lobbying actions : 3,7 million euros
- Actions to support patients and their families : 16,9 million euros
- The functioning of the Association : 1,4 million euros
- Establishment of care : 7 million euros
Main actions :
- Pluridisciplinay consultations
- Regional services
- Development of innovative technical aids
- Lobbying
- The annual conference of families and members "Journées des Familles"
- Rare Diseases Platform
-2,9% are dedicated to medical and scientific communication
During the 2006 financial year, AFM invested 2,78 million euros in communication.
Génocentre : 0,45 million euro
- VLM magazine : 0,35 million euro
- Internet : 0,39 million euro
- Assessment 20 years of actions : 0,31 million euros
- Others : 1,28 million euros
Main actions :
- the Génocentre conference center
- « VLM », the Association’s magazine
- the Généthon laboratory and the Institut de Myologie Open Days
- Media contacts for circulation of medical and scientific information).
- Internet websites
- Edition of information publications.
Fund-raising expenses : 8,5%
9 790 546 euros of the resources were dedicated in 2006 to the fund-raising expenses.
The expenses incurred in appealing to public generosity include :
-Donation and bequest processing costs.
-Post office costs incurred by pledges and fiscal receipts.
-Participation in the production of the Telethon 30 hour –TV show.
-Equipment and logistics of the 136 coordinating teams.
- 36 37 pledge number service.
-Development of the fund-raising website
www.telethon.fr Administrative expenses : 7,2%
8 271 066 euros of the resources were dedicated to the running of the Association :
- Administrative expenses (general management, administration, informatics, the accounts department, the human resources department, general services)
- BVQI (certification of services)
- The Association’s governing bodies (general meeting, the board of directors, management committee)
- Other communication expenses include financial communication( Annual Report, accounts) and General meeting.
Donors’ direct line: 0 825 07 90 95
For all your questions the AFM has put a donors’ direct line (in french) : 0825 07 90 95 at your disposal. (0.15 euros per minutes, inc tax).
Two possibilities are available:
- 1: for any questions relating to donations or fiscal receipts (office open from Monday to Friday 9am-9pm and on Saturday 10am-6pm).
- 2: for all other questions, an operator will answer (9am-5:30pm, and a voicemail recording service outside these hours).
You can find on the french version of this site the Annual Report.