How donations are used

How are your donations used in 2008 ?

 
Research programs and services : 82,1%

-61,3% are dedicated to curing diseases.

During the 2008 financial year, AFM invested 66 million euros in curing diseases.
This involves expenses incurred in research and development of therapeutics (32,2 million euros), as well as the Généthon laboratory (21,2 million euros), the Myology Institute (7,1 million euros) and I-Stem (2,6 million euros).
Main actions :
- Généthon laboratory
- Myology Institute
- I-Stem
- Calls for proposals
- International programs (the University of Pennsylvania; Laval University)
- Industrial programs
- Clinical trials.

-35,9% are dedicated to helping patients

During the 2008 financial year, AFM invested 35,5 million euros in helping patients.
This involves expenses incurred in :
- Medical and paramedical actions : 4,6 million euros
- Lobbying actions : 3,3 million euros
- Actions to support patients and their families : 18,8 million euros
- The functioning of the Association : 1,4 million euros
Main actions :
- Pluridisciplinay consultations
- Regional services
- Development of innovative technical aids
- Lobbying
- The annual conference of families and members "Journées des Familles"
- Rare Diseases Platform

-2,8% are dedicated to medical and scientific communication

During the 2008 financial year, AFM invested 2,7 million euros in communication.
This involves expenses incurred in :
- Génocentre : 0,56 million euro
- VLM magazine : 0,37 million euro
- Internet : 0,39 million euro
- Others : 1,42 million euros
Main actions :
- the Génocentre conference center
- « VLM », the Association’s magazine
- Laboratories Open Days
- Media contacts for circulation of medical and scientific information.
- Internet websites
- Internet websites
- Edition of information publications.


Fund-raising expenses : 10,8%

13 041 052 euros of the resources were dedicated in 2008  to the fund-raising expenses.
The expenses incurred in appealing to public generosity include :
-Donation and bequest processing costs.
-Post office costs incurred by pledges and fiscal receipts.
-Participation in the production of the Telethon 30 hour –TV show.
-Equipment and logistics of the 134 coordinating teams.
- 36 37 pledge number service.
-Development of the fund-raising website www.telethon.fr

Administrative expenses : 7,1%

8 540 172 euros of the resources were dedicated to the running of the Association in 2008 :
- Administrative expenses (general management, administration, informatics, the accounts department, the human resources department, general services)
- The Association’s governing bodies (general meeting, the board of directors, management committee)
- Financial communication ( Annual Report, accounts)
- General meeting.

Donors’ direct line: 0 825 07 90 95

For all your questions the AFM has put a donors’ direct line (in french) : 0825 07 90 95 at your disposal. (0.15 euros per minutes, inc tax).

Two possibilities are available:
- 1: for any questions relating to donations or fiscal receipts (office open from Monday to Friday 9am-9pm and on Saturday 10am-6pm).
- 2: for all other questions, an operator will answer (9am-5:30pm, and a voicemail recording service outside these hours).
You can find on the french version of this site the Annual Report.


Update 2009/06/29
A.F.M. - 1, rue de l´Internationale - BP 59 - 91 002 Evry cedex - Tél. : +33.1.69.47.28.28
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