Minimising disability and maximising quality of life depends upon accurate diagnosis and adapted care, appropriate means to compensation, choice of a place to live, a life project and full integration into society. AFM’s actions towards families aim to help patients have the best quality of life while waiting for a cure. Similarly, in the scientific field, AFM provides innovative solutions, it supports their development and implementation on a larger scale by public or private partners, and lobbies public authorities for changes in medical/research structures.

• A satisfactory support programme
Responding to the needs and expectations of families is one of the AFM’s constant concerns.
• Homogenous access to quality care
Improving the medical management of neuromuscular patients, disseminating the best practices and specificities of these diseases to health professionals, supporting the setting up of pluridisciplinary consultations dedicated to the approval of reference centres etc. Access to quality care is a priority among the AFM’s activities.
• The patients’ voice
Making sure that patients’ preoccupations are taken into account – that is the principle behind the AFM’s claims initiatives. Thus, in March 2007 the board of governors of the AFM decided to maintain its claim for the right to integral, universal and immediate compensation.

From 1988 to the end of 2007, AFM has invested 511 million euros for this mission (36,3 million euros in 2007).